DEP memo on WTC Health Registry, Sep 2003

NYC 9/11 Public Portal Document

Also, WTC Registry staff will be mailing information about the WTC Registry and how to enroll. These mailings will go to people who lived south of Canal Street in Manhattan on September 11, 2001. Mailings will also be sent to some employees who worked in buildings south of Chambers Street. We will also send information to workers and volunteers from the World Trade Center disaster site and the Staten Island Landfill.

What Happens After I Enroll? After you enroll, a researcher will call you to either interview you by phone or to arrange a face-to-face interview. Some of the questions you will be asked include;

• Where were you on 9/11? • How long were you in areas with smoke and fumes? • Have you had any health problems since 9/11? • Have you had added emotional stress?

Researchers will also ask you for your name, address, and date of birth - so they can follow-up with you later. The WTC Registry staff will not share information about you with anyone else.

What if I Decide To Quit The WTC Registry? Participation in the WTC Registry is completely voluntary. Any one who enrolls in the WTC Registry can drop out at any time.

Is the Information Collected by the WTC Registry Confidential? All information we collect is confidential. Information on individual people is never shared with anyone outside of the WTC Registry staff. To further insure this, we will have a Federal Certificate of Confidentiality that protects individual identifying data from subpoena in court or from Freedom of Information Act (FOIA) requests.

rm not a U.S. Citizen. Can I enroll? Yes. You do not need to be a U.S. citizen or a permanent U.S. resident to enroll in the WTC Registry. We will not ask about immigration status. All information will remain strictly confidential, and will not be reported to the Bureau of Citizenship and Naturalization Services.

Will information be available in languages other than English? Yes, you can still participate. Interviews will be conducted in Mandarin, Cantonese, and Spanish and other languages as needed.

How Can I Contact the WTC Registry? You can visit our Web site at www.nvc.gov/health/wtcregistrv or call New York City’s toll- free information line at 3-1-1.

Toll-free Phone Numbers to Find Out About Mental Health and Counseling Services Available to Those Affected by the WTC disaster:

1-800-LIFENET (1-800-543-3638) for English speakers; ASIAN LIFENET (1-877-990- 8585) for Chinese language speakers; 1-877-AYUDESE (1-877-298-3373) for Spanish language speakers; or TTY: 212-982-5284. For other languages you can call 1-800- LIFENET and ask for an interpreter.

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