NYC 9/11 Public Portal Document
advocates and others, calling on it to allow public input on procedures for "safeguarding" and
sharing a vaguely defined set of information between firefighters, police officers, public health
researchers, and federal, state and local governments. In a news release, they wrote, "Under the
auspices of fighting terrorism, the Department is poised to write — without guarantees for public
input — procedures that could sweep up otherwise publicly available information that has
nothing to do with terrorism into a zone of secrecy while subjecting millions of Americans to
confidentiality agreements."
Disaster experts, instead, emphasize that officials should enlist the public’s help. They stress that
it is important to have the public trust so that it can be depended upon to help in a crisis, by, for
example, stopping cell phone use so as not to deter the transmission of emergency information.
Recommendation: "Make data available as soon as possible, with a registry ofsamples. ’’
(5) Better training andpreparedness
Fire departments are not used to respirators needed for hazardous events unless they’ve been
trained. Some first responders don’t fall into current “environmental health” training and went
into the WTC disaster without any sense of the consequences of being exposed, such as tow truck
operators, electricians, telephone repair people and others need to be considered. (4)
In responding to the World Trade Center disaster, local hospitals were ready for any casualties
and injured victims because they were prepared fi-om the last terrorist attacks. In Arlington
County, local emergency responders had experience from an earlier airport disaster. In New York
City, by contract, local, state and federal agencies were not prepared to coordinate their efforts
because those disaster plans had never been tested before. And, strikingly, the Rand Corporation
has found that few localities are prepared for chemical or biological terrorism (5)
Recommendation: Have a broader definition offirst responder, says Mark Penn of the Arlington
County Office ofEmergency Management.
(6) Better health registries and health tracking. Localities should start developing health data
right away, instead ofsimply relying on samples and monitors.
New York’s 9/11 Environmental Action group complained that the city waited too long—two
years—to start its promised Health Registry in New York, months after physicians, researchers
and residents clamored for it.
A similar charge is leveled at the national level. “The September 11 attacks have made the gap in
our public health knowledge more dangerous than ever,” according to advocates for better disease
monitoring. “While Congress is considering how to help the public health system be better
prepared in the face of unprecedented health risks—^whether fi-om the increasing concerns of
disease clusters or the unforeseen threats from chemical and biological terrorism—we must make
sure investments are made in the right way and that they part of a long-term commitment.”
While we track more than 50 infectious diseases in this country, the Pew Environmental Health
Commission found almost no national monitoring of chronic diseases. (“For instance, more than
half of the states have no ongoing tracking and monitoring of asthma, and less than half of the
nation's population is covered by birth defects registries. Only nine states report tracking
developmental disabilities such as mental retardation and cerebral palsy.”)
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